The Huntington’s Disease Society of America (HDSA) will be holding its 29th Annual Convention at the Galt House in Louisville, KY from June 20-22. Nearly 1,000 families, doctors & supporters head to The Galt House to raise awareness for HD.
On Thursday, June 19th at 5pm, HDSA invites folks from the local community to participate in the Convention kick-off walk at no charge.
The Convention provides the world’s largest singular opportunity to personally learn from and build relationships with a wide cross-section of the HD community. The spectacular event offers insightful research seminars from top clinicians and scientists, as well as support and education forums for families affected by Huntington’s disease.
“Too often families facing HD fight the disease alone and are burdened by generations of loss from this hereditary illness,” said Louise Vetter, CEO of HDSA. “The HDSA Annual Convention provides a unique opportunity for families to share and learn together. It is important that they are armed with the knowledge and hope they need to care for their loved ones facing HD today and contribute to a healthier tomorrow.”
To register for this year’s convention, please visit: https://www.hdsa.org/convention-registration/. Take advantage of the early bird registration before May 31st!
HD is a rare, genetic neurodegenerative disease that progressively causes total physical and mental deterioration that begins during an individual’s prime working years. Every individual with HD will ultimately lose the ability to live independently and die from the disease. Currently, there is no cure for HD. Today, 30,000 Americans are known to have HD, and another 200,000 are considered ‘at risk’ of inheriting the disease from an affected parent. Each child of a person with HD has a 50/50 chance of inheriting the fatal gene and everyone who carries the gene will develop the disease.
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About the Huntington’s Disease Society of America
The Huntington’s Disease Society of America (HDSA) is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s disease (HD). Founded in 1968 by Marjorie Guthrie, wife of folk singer Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide community services, education, advocacy and research to support everyone affected by HD.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Contact Information
- The Galt House
- 140 North Fourth St., Louisville, KY 40202
- 212-242-1968 x229
Event Time
- Thursday, June 19, 2014
- 8:00 PM
Price
- $85-$220, See Website